My copy of Balance from DUK fell through the letterbox yesterday. I read the letters - one from a bloke who says DAFNE has wrecked his life, then I turned over and when I arrived at page 20 I discovered that De Montfort University Leicester are developing an implantable, self-regulating insulin pump. They are looking for T1's and T2's who take insulin AND also existing Pump users. This covers one heck of a lot of us on here. They want us to complete a survey, which is fairly comprehensive about of our views of pumping etc and also what we would think about an implantable pump.
I spoke to Prof Taylor yesterday (poor woman - DUK told em Balance came out on 01 March so they were working towards that date and by yesterday the Qnr wasn't even on the Website, hence why I telephoned to enquire, fully expecting to be put through to a side-kick - but was put straight through to her! - anyway - she's lovely and said they were pedalling as fast as they could and hoped the Survey would be on by close yesterday - well it's there now!) who wants to contact as many as poss - so i told her about the forum - and here we go.
You can find all the info and the Questionnaire here:
The only thing they haven't got is the FREEPOST address yet and I warn you - it's 18 pages so I'll have to stick it in a big envelope with a ditto stamp, cos I'm posting mine back in about 3 minutes time! Took me about 15-20 mins to complete I think.
Call me daft if you will - but I think this is really exciting!
I'd take a lot of convincing, to give almost complete control of my diabetes to a machine. I work as a Web Developer, previously a Software Engineer, and hence I have a bit of distrust for this sort of thing as I know how badly things can go wrong! Still very interested though. Will do the survey when I get a chance.
I'm also pretty interested to see what the dude complaining about DAFNE said. Is the article published online?
G.
Type 1 diabetic for 14 years Taking Levemir and Humalog A1Cs... Nov '08: 7.3% Jan '09 (post-DAFNE): 6.7%
My copy of Balance from DUK fell through the letterbox yesterday.
I use Charmin
On the cusp between Type 2, IGT and Reactive Hypoglycemia A1c 5.2 5.2 5.6 Old lipids HDL 0.63 LDL 5.2 Trigs 4.3 Now HDL 1.4 LDL 2.4 Trigs 0.7 BP was 145/95 now around 125/80 Diet, exercise. Alpha lipoic acid 300mg, Olmesartan 20mg, Simvastatin 10mg
Well I know a lot of us are terribly cynical about DUK and quite understandably in some respects - but you can find out the odd thing you find interesting and of course turn to the back page and read Arthur Smith's column which I enjoy, like his SOH - and his D is defo incidental to his life. They have proved useful to me in the past (ie the HelpLine)
Plus the fact that if you don't belong to summat or get a bit involved with it - you have no chance of it changing, have you?
Well I think implantable pumps are a brillo idea anyway - no idea how many million years twill be before they manifest themselves, not how long it will ake to iron out all the problems! - but how do you do any of that unless you have a guinea pig or 2?
So to begin with you are certainly still going to have to test your blood - if not forever - and have the wherewithall to to deal with glitches be they over or under-doses of insulin ie 100% access to glucose and insulin, as per now. My mate Michelle still has Novorapid pens to hand for emergencies - if she come to Sharon's and she gets a blockage she just throws her in the car and brings her round here (the pens being at home and my house being a lot nearer!) I take a pen out the fridge when Shaz rings, so it's ready for her and Shel replaces it later with one of hers.
I mean - how did the first people with heart-pacemakers fare? - that would be even MORE scary wouldn't it, surely? - yet now - if any of us needed one we'd just get it done asap, wouldn't we? Not without trepidation obviously but it's proven technology by now! It only got there because folk were willing to try em in the first place.
The anti-DAFNE bloke had 'perfect control' before he went on the course and is now 'all over the place' according to him. Personally I have no understanding as to how that could happen or be allowed to happen! Methinks he doesn't understand summat or (heaven forfend!) is doing summat wrong. From what I know from everyone I've ever heard on the subject - you get so much support from the profs whilst you are 'getting there' it seems to me that this is 99.9% ring-fenced NOT to happen. In any case - why doesn't he just go back to whatever he did before if the DAFNE way really doesn't suit him and he can get such perfect control without it? Something fishy in the State of Denmark here ........
It's ONLY diabetes. There are many worse things Administrator Group
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Personally I have no understanding as to how that could happen or be allowed to happen! Methinks he doesn't understand summat or (heaven forfend!) is doing summat wrong. From what I know from everyone I've ever heard on the subject - you get so much support from the profs whilst you are 'getting there' it seems to me that this is 99.9% ring-fenced NOT to happen. In any case - why doesn't he just go back to whatever he did before if the DAFNE way really doesn't suit him and he can get such perfect control without it? Something fishy in the State of Denmark here ........
Probably thinks he can now eat carbs for England and shoot appropriately rather than knowing what we know which is that the less carbs you eat the less chance there is for error. Sigh.... but as you so rightly say, Sedge, why not revert to what he was doing before.
Incidentally after nearly 4weeks eating out here I am craving veggies! Just been out for lunch and once again everything on t'menu was accompanied by pasta, rice or chips and salad... not an honest veggie in sight!
Patti Type 1.5 (LADA) diagnosed May 2003. On Levemir/Novorapid. Last Hba1c 5.6 never been over 5.7 for 6+ years.
Well I think implantable pumps are a brillo idea anyway - no idea how many million years twill be before they manifest themselves, not how long it will ake to iron out all the problems! - but how do you do any of that unless you have a guinea pig or 2?
Even as you write, NICE are probably having Meetings to determine why they are not going to fund them.
Yeah I agree the concept has been around for a while now but no-one has yet managed to make it work successfully and reliably. Development is an excellent plan.
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The anti-DAFNE bloke had 'perfect control' before he went on the course and is now 'all over the place' according to him. Personally I have no understanding as to how that could happen or be allowed to happen! Methinks he doesn't understand summat or (heaven forfend!) is doing summat wrong. From what I know from everyone I've ever heard on the subject - you get so much support from the profs whilst you are 'getting there' it seems to me that this is 99.9% ring-fenced NOT to happen. In any case - why doesn't he just go back to whatever he did before if the DAFNE way really doesn't suit him and he can get such perfect control without it? Something fishy in the State of Denmark here ........
He's a plant, NICE have discovered how expensive the courses are and want to discredit them
He could have been one of those lucky individuals who did well on Mixturd and whose balance (!) has now been disturbed. Very likely as everyone else suggests he has inappropriately modified his diet, either he's trying to bolus for deep fried Mars bars or more likely he is eating far more Heart Healthy carbs and less nasty dangerous fat and getting BG spikes up the wazoo.
On the cusp between Type 2, IGT and Reactive Hypoglycemia A1c 5.2 5.2 5.6 Old lipids HDL 0.63 LDL 5.2 Trigs 4.3 Now HDL 1.4 LDL 2.4 Trigs 0.7 BP was 145/95 now around 125/80 Diet, exercise. Alpha lipoic acid 300mg, Olmesartan 20mg, Simvastatin 10mg
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