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Expert Patients Programme  This thread currently has 269 views. Print
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Nygirl
February 8, 2010, 12:17 Report to Moderator

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Not sure if I have seen this metioned on the forum before but I have been asked to attend this
in April for 6 weeks via my GP. Have any of you heard of it or been on it. I am undecided as to whether it will
be beneficial or just a complete waste of time. Maybe I should attend the first one and then make a judgement.

http://www.expertpatients.co.uk/course-participants

Any thoughts welcome


claire
Type 1, Coeliac & Hyperthyroid
DX June 2008 on Lantus/Novorapid

First HbA1c - 14.6
HbA1c Sept 09 - 5.9, March 10 - 5.8, July 10 - 6.0!!
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TerryG
February 8, 2010, 14:04 Report to Moderator

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Claire

Yes, we've heard of it. Devon girl (Mandy) did start it several years ago but was unable to complete it because of ill health. I think Inspirationalley was invited to do it but don't know if she did.

NB to readers: this is the Expert Patient (non-condition-specific) course, not the T2 Xpert diabetes course. I don't know if the latter owes some of its provenance to Expert or Desmond or a mix of the two.


T1 DX 06/2003 using Lantus and Novorapid. Dafne graduate.
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Pattidevans
February 8, 2010, 16:34 Report to Moderator

It's ONLY diabetes. There are many worse things
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Mandy completed the Expert Patient course and was going on to train as an instructor, however, she didn't complete the instructor's course because of ill health.

Inspiration Alley did blog the first two sessions here http://www.diabetes-support.org.uk/joomla/diabetes-blogs?start=20  I don't know if she went to any more, but definitely didn't blog them if she did.


Patti

Type 1.5 (LADA) diagnosed May 2003.  On Levemir/Novorapid.  Last Hba1c 5.6 never been over 5.7 for 6+ years.
© 2008 Patti Evans
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FordPrefect
February 8, 2010, 17:00 Report to Moderator

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I havent done the expert patients program but as I have other issues ongoing I have read a lot of other sites about other conditions such as MS and Arthritis. The consensus that I noted was that most people felt this course was irrelevant and a waste of their time but this might be different versions etc etc. If you get the opportunity I would do it as its just a few hours wasted if its pointless but its possible there are gains from it. Would love to hear your opinion on it!


Type 2(but apparently with little insulin resistance) Diagnosed March 2008 - Metformin 1500mg s/r, Byetta 5 micrograms twice daily, 20mg lisinopril(for necropathy), 600mg pregabalin(for neuropathy) + Salbutamol for asthma. Also dyslexic so please dont pull apart my spelling or grammar I do my best Email/MSN : mark@koszler.net, skype : fordprefectu, googletalk : fordprefect0, SL : Jonkarra Jeruben. Website : http://koszler.net
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richj
February 8, 2010, 19:17 Report to Moderator

good control is not always easy but is achievable
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Unless I'm very mistaken our Moby did the full expert patient course, he doesn't speak very highly of the course itself but I believe he enjoyed the contact with others with a variety of conditions. I'm sure you will get the full run down once he sees this thread.  OVER TO YOU MOBY !


dx type 2, 2002 diet,  5.8 Hba1c metformin, gliclazide, usual other stuff and  exercise
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Moby
February 8, 2010, 19:57 Report to Moderator

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t2  diagnosed 2002
metformin lantus novorapid. no units for non carb meals. 6 units for 'low' meals and a pure stab in the dark for anything else!  
a1c  10.4, 6.1, 6.7








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VBH
February 8, 2010, 20:39 Report to Moderator
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WHOA.

This is NOT XPERT.  This is completely different.  The expert-patient course is not diabetic-specific for starters.
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richj
February 8, 2010, 20:55 Report to Moderator

good control is not always easy but is achievable
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Well I did say unless I'm mistaken, I obviously was. I stand corrected.


dx type 2, 2002 diet,  5.8 Hba1c metformin, gliclazide, usual other stuff and  exercise
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Moby
February 8, 2010, 21:23 Report to Moderator

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nygirl's link.

http://www.expertpatients.co.uk/course-participants

is the header to the link below

http://www.expertpatients.co.uk/course-participants/courses
at the bottom of that page is a link to the diabetic xpert course i attended run by Bury PCT

http://www.expertpatients.co.uk/course-participants/courses/x-pert-diabetes-course
sorry if that wasnt clear!

come to think of it seems a bit dodgy to call one scheme 'Expert' and another one 'Xpert'! could cause mucho confusion  


t2  diagnosed 2002
metformin lantus novorapid. no units for non carb meals. 6 units for 'low' meals and a pure stab in the dark for anything else!  
a1c  10.4, 6.1, 6.7








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sedge
February 8, 2010, 22:40 Report to Moderator

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I think Mandy concluded it was all down to the course leaders as to how 'good' it was likely to be.  I know they talk about coping with pain for instance.  Well very important if you get pain, I don't knock it at all.  But highly irrelevant for most diabetics esp youngish T1's without eg neuropathy - I suspect.

Although you do have opportunity to feed back so you could always say eg session 3 was completely irrelevant for me.

I'd be interested Claire, as I've always wondered about it myself!


Jenny

T1 DX 1972, 17u Levemir (13u am, 4u c.9.30pm) Novorapid 1u/10g CHO, 10mg Olmetec

HbA1c - 10/07 - 8.7,  01/08 - 7.8,  04/08 - 7.6  09/08 - 8.4  03/09 7.3  07/09 - 7.2  12/09 - 7.3  07/10 - 8.1

Lipids - July 09 - Total Chol 5.3, HDL 1.8, LDL 3.0, Trigs 1.0  Trigs/HDL 0.56
- July 10 - Total Chol 5.6, HDL 1.9, LDL 3.3, Trigs 0.9  Trigs/HDL 0.47

BP - June 10 - 127/79  July 10 136/66

TSH - July 10 - 5.1
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Nygirl
February 9, 2010, 10:14 Report to Moderator

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Thanks Guys, think I may go to the first couple as they are 2 and half hours every week for 6 weeks
and see what I think. Give some feedback and take it from there.


claire
Type 1, Coeliac & Hyperthyroid
DX June 2008 on Lantus/Novorapid

First HbA1c - 14.6
HbA1c Sept 09 - 5.9, March 10 - 5.8, July 10 - 6.0!!
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sedge
February 9, 2010, 10:55 Report to Moderator

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Claire, I picked up the current EPP leaflet at the docs this morning.  It says its suitable for anyone living with a chronic health prob and covers topics including the following:

Dealing with pain tiredness and stress
Healthy eating and exercise
Relaxation techniques *
Making plans for the future
Communication skills

How will EPP be of benefit to me?

Develop simple ways to manage your health condition **
Share experiences with others in similar situations
Increased confidence
Improved communications with health care professionals
Realistic about the effects of the condition on yourself and the family


I'd like to do the one marked *

I bet they can't do the one marked ** (esp after the second item in the first list!!!)

LOL


Jenny

T1 DX 1972, 17u Levemir (13u am, 4u c.9.30pm) Novorapid 1u/10g CHO, 10mg Olmetec

HbA1c - 10/07 - 8.7,  01/08 - 7.8,  04/08 - 7.6  09/08 - 8.4  03/09 7.3  07/09 - 7.2  12/09 - 7.3  07/10 - 8.1

Lipids - July 09 - Total Chol 5.3, HDL 1.8, LDL 3.0, Trigs 1.0  Trigs/HDL 0.56
- July 10 - Total Chol 5.6, HDL 1.9, LDL 3.3, Trigs 0.9  Trigs/HDL 0.47

BP - June 10 - 127/79  July 10 136/66

TSH - July 10 - 5.1
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Nygirl
February 9, 2010, 14:59 Report to Moderator

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That's why I'm not sure it will be that beneficial to me. I'll give it a go and see.


claire
Type 1, Coeliac & Hyperthyroid
DX June 2008 on Lantus/Novorapid

First HbA1c - 14.6
HbA1c Sept 09 - 5.9, March 10 - 5.8, July 10 - 6.0!!
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sedge
February 9, 2010, 16:33 Report to Moderator

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'Making plans for the future' made me laugh.  Wonder who it could be who just made a Will including a Family Trust type thing, which as the current law stands means that if either of the participants have to go into care in future, no-one can get their capital off em?

Of course we will have to change our particular arrangements should we get the opportunity to add, 'Please switch the plug socket to the off position, if I lose my marbles' etc......

I have a strong feeling that probably isn't what they mean!


Jenny

T1 DX 1972, 17u Levemir (13u am, 4u c.9.30pm) Novorapid 1u/10g CHO, 10mg Olmetec

HbA1c - 10/07 - 8.7,  01/08 - 7.8,  04/08 - 7.6  09/08 - 8.4  03/09 7.3  07/09 - 7.2  12/09 - 7.3  07/10 - 8.1

Lipids - July 09 - Total Chol 5.3, HDL 1.8, LDL 3.0, Trigs 1.0  Trigs/HDL 0.56
- July 10 - Total Chol 5.6, HDL 1.9, LDL 3.3, Trigs 0.9  Trigs/HDL 0.47

BP - June 10 - 127/79  July 10 136/66

TSH - July 10 - 5.1
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Pattidevans
February 9, 2010, 16:45 Report to Moderator

It's ONLY diabetes. There are many worse things
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The trouble with most of these courses is that they are aimed at the lowest common denominator.  If you are clued up regarding your condition I reckon that you will often get bored on such courses.  I'd like to be proved wrong.


Patti

Type 1.5 (LADA) diagnosed May 2003.  On Levemir/Novorapid.  Last Hba1c 5.6 never been over 5.7 for 6+ years.
© 2008 Patti Evans
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