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Diabulimia  This thread currently has 3,937 views. Print
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leanne Bury
January 15, 2009, 22:35 Report to Moderator
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I hardly ever take my insulin , i hate it, i love not being hungry , n its a tool that i knw many people use, its sad to say bt even tho i knw all of the complications, i still do it...
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maturetype1
January 15, 2009, 22:41 Report to Moderator

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Hello Leanne, I found it hard to inject into my stomach at first but afterwards I thought that wasn't too bad. Why do you hate taking insulin? Do you take any insulin at all? I hate the fuzzy head and the thirst when I didn't take insulin before i got diagnosed oh and the weeing all night I was just knackered all the time.


Wendy
Type 1 Diagnosed 5th December 2007 Levemir/Humalog Latest HbA1c 6.2



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Tiger Lily
January 15, 2009, 22:43 Report to Moderator

Type 1 since 1987, no longer insulin resistant
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Quoted from leanne Bury
I hardly ever take my insulin , i hate it, i love not being hungry , n its a tool that i knw many people use, its sad to say bt even tho i knw all of the complications, i still do it...


sorry to hear this Leanne, you need to seek help in order to overcome this aversion. It's a well known problem with young ladies and it can be overcome


kate, type 1 LADA? Aug 21,1989
the treatment triad for diabetes is diet/exercise/meds! don't forget your exercise

http://www.diabetes-support.org.uk/joomla/firststeps/newdiagnosed

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Pattidevans
January 15, 2009, 23:04 Report to Moderator

It's ONLY diabetes. There are many worse things
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Leanne

You should know you are not alone.  This happens, another member has been through this... see http://www.freewebs.com/diabolicaldiabulimia/  This person is PrincessFairyClare on here and a very courageous woman.  Take a look at the Lurking thread.

Welcome and please stick around!


Patti

Type 1.5 (LADA) diagnosed May 2003.  On Levemir/Novorapid.  Last Hba1c 5.6 never been over 5.7 for 6+ years.
© 2008 Patti Evans
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Alan
January 16, 2009, 02:58 Report to Moderator

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Quoted from leanne Bury
I hardly ever take my insulin , i hate it, i love not being hungry , n its a tool that i knw many people use, its sad to say bt even tho i knw all of the complications, i still do it...
Whether or not that is a problem depends on your personal situation. I presume you are type 2, is that correct? Tell us a little more about yourself and your diabetes and what you are doing, apart from not using your insulin, to manage it.


Cheers, Alan, T2 dx April 2002, Australia.
--
Everything in Moderation - Except Laughter.
http://loraldiabetes.blogspot.com (Privacy On Forums And The Web)
http://loraltravel.blogspot.com (Buenos Aires, Argentina)
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HelzBelz
January 16, 2009, 13:37 Report to Moderator

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Hey there,
just wanted to add to Wendy's comment...I also hate the thirst and pee'ing and tiredness that goes along with high bs........I had this today as I couldnt take my Levemir because was restarting my Lantus at Clinic......I couldnt wait to take it in the room...(even although I had taken novorapid to try and carry me)...

I went through a stage in my teens where I didnt want to inject........not anything to do with my diet/eating.....I just didnt like injecting.....my parents would sit on me and pin me down to give me my insulin....... (at that time was on mixed insulatard and velosolin).........

Im lucky mines didnt end up a much bigger issue.......some of us who have experienced temporary complications ...and some of us who are living with complications........it is terrifying and I wouldnt wish that fear/long term worry on anyone.......or their loved ones......
(temporary blindness for 4 months after eye surgery (non diabetes related)...scared me enough to never ever want to go blind...and I now appreciate my sight more...........................and after HUGE hypos as a teen where I temporarily lost the ability to talk.....was enough for me to pull up my boot straps......I was re-taught to inject and used an injection gun rather than self injecting)

good luck to everyone who has difficulty with their diabetes and other serious issues accompanying it. xxx


xxHelen xx

type 1 for nearly 29 years, diagnosed at 6 yrs old.  
Using Lantus and now attempting Apidra (used to be on Novorapid).  Due to start pump training next year
Never stop trying!!!  
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sedge
January 17, 2009, 14:19 Report to Moderator

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Leanne - if you were actually on the correct dosages of the correct insulin - then you shouldn't 'not feel hungry' caused by insulin!

I know it's very hard sometimes and Patti's right - you'll need some help getting your head round it all - but the really good news is the NHS has acknowledged that they do need to help folk like yourself - and will do so - if only they properly know how bad the thing is for YOU.  And it's you that has to make em aware.

I think you've been really brave telling us what you have about it, so far.

Please take the next steps!  You know - once you are able to get going, YOU will be in control of your body and your life with the comfort of knowing that nothing should be going wrong in the bakground - as far as you can help it and I can't explain sufficiently really, what a sense of relief this will be when you get there and how it will empower you.  I'm sure you've heard all this before - but you know - it turns out to be true very often (my little probs were a bit different, but I still grudgingly think sometimes - 'Smug b...'s! - why did they have to turn out to be right?' LOL - and y'know those who helped me were far from smug, they were all perfectly lovely people, who I could really talk to about everything - and there was a lot more 'to' it than I even considered at the outset - things I'd never even dreamt of were affecting me.)

Please try?


Jenny

T1 DX 1972, 17u Levemir (13u am, 4u c.9.30pm) Novorapid 1u/10g CHO, 10mg Olmetec

HbA1c - 10/07 - 8.7,  01/08 - 7.8,  04/08 - 7.6  09/08 - 8.4  03/09 7.3  07/09 - 7.2  12/09 - 7.3  07/10 - 8.1

Lipids - July 09 - Total Chol 5.3, HDL 1.8, LDL 3.0, Trigs 1.0  Trigs/HDL 0.56
- July 10 - Total Chol 5.6, HDL 1.9, LDL 3.3, Trigs 0.9  Trigs/HDL 0.47

BP - June 10 - 127/79  July 10 136/66

TSH - July 10 - 5.1
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sedge
January 17, 2009, 14:36 Report to Moderator

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PS Leanne - it's true as Alan says, we don't know anything about you really yet do we? - would be nice if you could post in the intro section telling us a little bit about yourself, eg what Type you actually have and which medications and insulins you are on - and any other info you want to share like pets or hobbies or - well - anything really, so we can get to know you a little bit - and hopefully be able to suggest actual things that might help!

If you are prepared to tell us whereabouts you live - you never know a member of this Forum might know exactly who might be able to help you - it's a long shot but you just never know!


Jenny

T1 DX 1972, 17u Levemir (13u am, 4u c.9.30pm) Novorapid 1u/10g CHO, 10mg Olmetec

HbA1c - 10/07 - 8.7,  01/08 - 7.8,  04/08 - 7.6  09/08 - 8.4  03/09 7.3  07/09 - 7.2  12/09 - 7.3  07/10 - 8.1

Lipids - July 09 - Total Chol 5.3, HDL 1.8, LDL 3.0, Trigs 1.0  Trigs/HDL 0.56
- July 10 - Total Chol 5.6, HDL 1.9, LDL 3.3, Trigs 0.9  Trigs/HDL 0.47

BP - June 10 - 127/79  July 10 136/66

TSH - July 10 - 5.1
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PrincessFairyClare
January 17, 2009, 20:21 Report to Moderator
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Leanne

Please get in touch with me if you want to chat about this or want some support. I have been through the hell of Diabulimia and know first hand the awful effects it has on your body. I'd encourage you to get help and support for this.

My email address is on my website or if you prefer you could send me a private message.

I hope to hear from you soon
Clare


Type 1 since 1987

Please visit my website, http://www.freewebs.com/diabolicaldiabulimia detailing my experience of Diabetes and an Eating Disorder
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amy
April 10, 2009, 22:35 Report to Moderator
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i domt know if il be of any help,  was looking for some others in similar situations also? i suffer from this but am under the catorgy of 'anorexic' but it is controlled by what i do/not inject. i also lost eyesightin mt right eye but luckily though surgery have been(for now) able to save it.  an eating disorder is so strong that complications seem mino to the weight loss/ image, i know the risks,yet i can not 'see' my kidneys/liver/heart etc(although i do suffer from a very high pulse rate) i have nerve damage,it affects my eyesight,i never have energy,im constantly thirsty  etc etc but its the same with any person suffering with an ED without diabetes.they too,are damaging internal organs,it is the biggest killer through mental illness,but the fear of losing control#(ur so out of control u cant see it) and the fear of gaing the weight etc is to immence to put your real health first.
I can understand that others will not understand and i to sometimes think,'this is your life,your eyesight,youare playing with ,but its always 'tomorrow' or iv been alright so far,i wish things were differnt.i wish to god i wasnt diabetic (iv been since 11 am 22 now)  yet sometimes the ED has said no,this is good because without the injections or lack of i couldnt of done this it has 'helped' with my weight lose,
people say
'wouldnt it be great to eat what you want and not gain weight' well i know this, i often when on a binge have eaten and eaten thinking its ok because iv not had my insulin,none of this is going to count, knowing im going to lose weight or just not gain any. it is so stupis the rational side of me wants to change. NEEDS to change
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sami
April 10, 2009, 22:41 Report to Moderator

type 2 diabetic but it wont kill me
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hi amy and welcome to dsf  sorry to hear you have diabulimia i cant say i understand it at all but just wanted you to no there are people here who care and will try to help you in any way we can


sami
dx 08
type 2 metformin 3 x 500mg  Hb1Ac 5.7 down  from 5.8 was 7.9 at dx  








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libra201055
April 10, 2009, 22:46 Report to Moderator

I control my Diabetes it does not control me
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Hi Amy - welcome from me too

There have been others in the forum in your situation.

If you want to make changes there are lots of people in this forum who will be only too happy to help you.



Jenny

Dx Type 2 in October 2004

Meds currently - 2 x 500mg Metformin + Ramipril (10mg)

Stopped - Glimepiride (4mg) (4/6/09); Aspirin (75mg) (June '09) & Atorvastatin (10mg) (14/3/09)

HbA1c - At Dx 12.3; '05 - 7.1; '06 - 8.1; '07 - 7.1 & 7.3; Feb'08 - 10.3; July '08 - 7.7; Feb '09 - 5.8: Aug '09 - 5.6  


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leafniggle
April 10, 2009, 23:19 Report to Moderator
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Hi Amy
I'm glad you've found this forum, where there are people who have had similar problems. You explain your difficulties so clearly, I feel sure your understanding will help you fight the illness.


Type 2 "pre-diabetic". No Diabetes meds.


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Tiger Lily
April 11, 2009, 00:20 Report to Moderator

Type 1 since 1987, no longer insulin resistant
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Amy,  welcome to DSF

i'm sorry you have to deal with diabulemia as that's no fun at all

i hear you, you know what the consequences are, but the 'demand' to lose weight outweighs the horrors of complications from not injecting your insulin

may i ask, are you seeing a counsellor about the diabulemia?  i know of people who do much better when they are getting help from a counsellor

take care, and i hope you stay safe!


kate, type 1 LADA? Aug 21,1989
the treatment triad for diabetes is diet/exercise/meds! don't forget your exercise

http://www.diabetes-support.org.uk/joomla/firststeps/newdiagnosed

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Pattidevans
April 11, 2009, 13:50 Report to Moderator

It's ONLY diabetes. There are many worse things
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Hi Amy

Welcome to the forum.  I am so sorry that you are suffering as you are.  Long ago before I was diabetic I had a brief period where I was heading for diabulimia... but fortunately I had help pretty quickly and it turned me round.  It's not easy though.... Please stick around, at least we can offer you some emotional support.


Patti

Type 1.5 (LADA) diagnosed May 2003.  On Levemir/Novorapid.  Last Hba1c 5.6 never been over 5.7 for 6+ years.
© 2008 Patti Evans
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