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Retinopathy Screening  This thread currently has 1,159 views. Print
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Lady J
November 18, 2009, 17:39 Report to Moderator

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Had mine today and had double whammy good news:

1) I got away without needing the Dreaded Drops for the third time running (they actually nearly gave me them until I asked not to!); and
2) Got the all clear on both eyes on the spot

Woo Hoo!!


Type 1 - Diagnosed November 2007
First HbA1c: 11.2
Last HbA1c: 5.9  
Novorapid and Levemir (latter started Dec 08 )

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Pattidevans
November 18, 2009, 17:46 Report to Moderator

It's ONLY diabetes. There are many worse things
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Fantastic Jenny - doesn't it feel like a HUGE relief?  Well, it's your good control paying off!


Patti

Type 1.5 (LADA) diagnosed May 2003.  On Levemir/Novorapid.  Last Hba1c 5.6 never been over 5.7 for 6+ years.
© 2008 Patti Evans
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Lady J
November 18, 2009, 17:47 Report to Moderator

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Enormous relief.  Like for most people the eye issues are the scariest part!


Type 1 - Diagnosed November 2007
First HbA1c: 11.2
Last HbA1c: 5.9  
Novorapid and Levemir (latter started Dec 08 )

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sami
November 18, 2009, 20:06 Report to Moderator

type 2 diabetic but it wont kill me
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that's great news jenny


sami
dx 08
type 2 metformin 3 x 500mg  Hb1Ac 5.7 down  from 5.8 was 7.9 at dx  








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lib
November 18, 2009, 20:08 Report to Moderator

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Well done
Agreed re the eyes thing - seems to be first to show signs of damage in us all!


Type 1
Diagnosed 12th September 2008 A1c Oct 08 7.9%   Last Hba1c 5.5

Now on Levemir and Novorapid

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Si Greenwood
November 18, 2009, 22:40 Report to Moderator

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With me they always tell me that the photos go away to be enlarged for a specialist to look at. The operator doesn't even look at them other than to make sure they have been taken correctly and they never comment on the results even when asked.
I have also asked not to have the eye drops but I was convinced that I should have them as the nurse said that the resulting pictures would be that much better and they may see things with a dilated pupil that they may otherwise miss. She did say though that if I didn't want them that was up to me and they wouldn't put them in.

I had my screening on Monday and I agree it's an awful experience. At my screening last year they said that there were Diabetic changes which obviously caused me to fear the worst. It was only when i saw my GP and specialist that they told me that after 20+ years of being Diabetic these things were expected and that i shouldn't be overly concerned. They also said that these things can come and go and that they can move around on the eye. Mid year, around june, I went for a standard eye test and the optician had a good look at the back of my eyes as I said that I'd been told that there had been changes. The optician said that he couldn't see anything and that he wouldn't know i was diabetic looking at my eyes.

Oh well. I'll wait for my result which could be up to 6 weeks!!! In the last 12 months my control has been much better so I'm hoping that things have improved and got better, having said that I have started to get a lot of really noticable floaters, something that the literature that they gave me on Monday stated may be a cause of concern. Having said that I had floaters in June, that is why i went to the optician, and he didn't find anything.


Type 1 since 1986.
Animas 2020 pump user since mid September 2009, was using Novorapid but at the moment trying Apidra, started with it at the start of March 2010.
HbA1C 6.5% in Nov '08, 6.3% in Jan '09, 5.7% in March '09, 5.3% in Oct '09, 5.0% in Jan '10, 5.5% end March '10 (rise put down to problems adjusting to Apidra).
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Pattidevans
November 18, 2009, 23:52 Report to Moderator

It's ONLY diabetes. There are many worse things
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Si I've had floaters for a million years... well anyway long long before diabetes, going back to my 30s.


Patti

Type 1.5 (LADA) diagnosed May 2003.  On Levemir/Novorapid.  Last Hba1c 5.6 never been over 5.7 for 6+ years.
© 2008 Patti Evans
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Tiger Lily
November 19, 2009, 00:54 Report to Moderator

Type 1 since 1987, no longer insulin resistant
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i have my eyes dialated at every eye check

this is the best way for the opthamologist/optician to SEE the back of your eye


kate, type 1 LADA? Aug 21,1989
the treatment triad for diabetes is diet/exercise/meds! don't forget your exercise

http://www.diabetes-support.org.uk/joomla/firststeps/newdiagnosed

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Si Greenwood
November 19, 2009, 10:02 Report to Moderator

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Quoted from Tiger Lily
i have my eyes dialated at every eye check

this is the best way for the opthamologist/optician to SEE the back of your eye


It may be the wording I used in my post but I did have the drops in the end, I didn't want them in as I had a big day at work Monday, but her saying that you get a better picture convinced me to let her put them in.


Type 1 since 1986.
Animas 2020 pump user since mid September 2009, was using Novorapid but at the moment trying Apidra, started with it at the start of March 2010.
HbA1C 6.5% in Nov '08, 6.3% in Jan '09, 5.7% in March '09, 5.3% in Oct '09, 5.0% in Jan '10, 5.5% end March '10 (rise put down to problems adjusting to Apidra).
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Nygirl
November 19, 2009, 10:21 Report to Moderator

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Good news Lady J, not sure how you get away with no drops, we have a nurse at the hospital whose job
it is just to put the drops in. I really dislike her!


claire
Type 1, Coeliac & Hyperthyroid
DX June 2008 on Lantus/Novorapid

First HbA1c - 14.6
HbA1c Sept 09 - 5.9, March 10 - 5.8, July 10 - 6.0!!
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Lady J
November 19, 2009, 10:33 Report to Moderator

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Yes, there is a nurse at my clinic too.  Quite a pleasant young man but maybe I just think that as I've never had the drops.

Believe me, they always say "ok, we'll START with no drops and see how we get on", but then warn me if the pictures aren't clear enough they will make me take the drops.  Between each couple of photos she gives you a break to sit with eyes closed to let the pupils dilate again.

In the end we looked through them all.  There were a couple of photos where you could see the light hadn't pentrated to the back of the eye (it looks like a large dark-ish area) because obviously my pupils were starting to get really small with the flashes.  These she discarded.  However, the rest were perfectly clear and bright (she showed me these against examples of what the photos should look like).  She had three good shots of each eye and was happy.

They are very professional.  They wouldn't have me leave the hospital with an inadequate set of shots, so I'm choosing to ignore the comments saying they won't be able to see properly, thanks!

They also get sent to the lab and reviewed again, and I get a letter in a few weeks confirming the result.


Type 1 - Diagnosed November 2007
First HbA1c: 11.2
Last HbA1c: 5.9  
Novorapid and Levemir (latter started Dec 08 )

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BATcher
November 20, 2009, 21:52 Report to Moderator

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I wonder where I saw the comment that "If you don't dilate, you may die early..."?


BATcher

Type 2, diagnosed June 1993, on insulin since May 2005; last HbA1c 6.6;
early morning: Levemir, 24 u;
at each main meal: NovoRapid, ~8-25 u, with Metformin, 1 g;
just before bedtime: Levemir, 24 u; also simvastatin and aspirin;
hoping expecting to go on Byetta clinical trial in a couple of months' time...
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Mattie
January 28, 2010, 23:58 Report to Moderator
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Hi.. just joined this today ....recently been told have background retinopathy (nearly 6 yrs dx) The guy at the screening said everything was ok  was told results in 6 weeks. 3 days later - letter "background Retinopathy" with limited info and inviting back for a screening in 12 months! I had my eyes check by the optician who said everything looked good.Any ideas?


T1 since 2004

40u Levemir per day, Novorapid 1u per 10g carbs
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Steven
January 29, 2010, 00:23 Report to Moderator
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I had exactly the same thing a couple of years ago (a month after I'd been to the optician and had an all clear).  I went a year later and they said it had been trivial and had now disappeared.

I strongly suspect they do it primarily to frighten you, otherwise, surely, they could give more information at the time.


Type 2 (diagnosed Summer 2006) - HbA1c (Sept '09) 6.9, (Mar '10) 6.4
Metformin 1000mg Ciclosporin 300mg Prednisolone 5mg Atenolol 25mg Ramipril 1.25mg Simvastatin 10mg Citalopram 20mg
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Mattie
January 29, 2010, 00:35 Report to Moderator
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I hope so Steven - how was your bg control when they said it and how was it afterwards?


T1 since 2004

40u Levemir per day, Novorapid 1u per 10g carbs
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